Welcome to the MJD Foundation
Mission Statement
The MJD Foundation seeks to provide a better quality of life for Indigenous Australian sufferers of
Machado Joseph Disease and their families in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services
Gayangwa’s Story
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 64 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40’s. She has been a carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 14 year old niece is already using a wheelchair.
Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Click here for our Documentary "No Shame, No Blame... Just Hope"
Latest News
Jun 10 - MJDF launch Aircraft Wheelchair Lifts =>More
Jun 10 - MJDF welcomes Simone McGrath to our team =>More
May 10 - MJDF receive NT Community Benefit Fund vehicle =>More
May 10 - Matt runs the Great Wall of China Marathon for MJD =>More
May 10 - Rotary Club of Sydney Cove come to the rescue in Baniyala =>More
Apr 10 - Gwenda's trip to QLD =>More
Apr 10 - Urinary Incontinence research grant awarded =>More
Mar 10 - MJD Genetic Book in Anindilyakwa launched =>More
Mar 10 - MJD Foundation visit MJD clients in Kuranda, QLD =>More
Mar 10 - Centrecorp support Central Australian sufferers of MJD =>More
Feb 10 - First volunteer is trained by Indigenous Community Volunteers =>More
Jan 10 - Gabby's Birthday =>More
Jan 10 - Bryan and Kathy Massey awarded OAM's =>More
Jan 10 - 2008-2009 Annual Report =>Download
Dec 09 - Natalya's ramp =>More
=>More News
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Coming Events
Photo Gallery
Visit out online Photo Gallery
(Click whenever you see the camera and it will take you to the Photo Gallery)