Welcome to the MJD Foundation
Mission Statement
The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services
Gayangwa’s Story
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 67 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s. She has been a carer for two of her sisters’ children for over 18 years. Now the third generation of her family is sick - her 18 year old niece has been using a wheelchair since she was 14.
Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Click here for our Documentary "No Shame, No Blame... Just Hope"
Latest News
Jan 12 - 2010-2011 Annual Report now available =>Download
Nov 11 - "Our Story" - Groote Eylandt's newest film makers hit the ground running => More
Oct 11 - MJDF conducts Genetics in General Practice workshops across Top End =>More
Sep 11 - Gabriella presents "My Story" using her iPad at Chronic Disease Network conf =>Here
Aug 11 - Rose's holiday of a lifetime =>More
Jul 11 - Carer Education Program launched =>More
Jun 11 - Zebrafish research Sydney laboratory tour =>More
Apr 11 - Gabriella goes on a trip of a lifetime to Sydney =>More
Coming Events
Jan 12 - Hip Hop Workshop for kids on Groote Eylandt =>More
Feb 12 - Elcho Island Aircraft Wheelchair Lift launch on 15th Feb => More
Feb 12 - Backyard Blitz on Groote Eylandt => More