Welcome to the MJD Foundation
Mission Statement
The MJD Foundation seeks to provide a better quality of life for Indigenous Australian sufferers of
Machado Joseph Disease and their families in Arnhem Land and beyond.
=> A message from our Chairperson
Gayangwa’s Story
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 64 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40’s. She has been a carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 14 year old niece is already using a wheelchair.
Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Latest News
Jun 09 - Some sad news about a beautiful man => More
Jun 09 - You can now see our short documentary "No Shame, No Blame... Just Hope" here online.
Apr 09 - MJD Foundation launches online donation facility => More
Apr 09 - ABC Radio interview with Libby Morgan => Podcast
Apr 09 - MJD Foundation representatives attend international MJD Workshop in the Azores => More
Mar 09 - SBS Foundation charities for 2009 announced - MJD Foundation is successful => More
Mar 09 - East Arnhem Shire Council to support the MJD Foundation => More
Feb 09 - Roseanna's trip to Seaworld, Movieworld and LOTS of shopping => More
Feb 09 - Senator Trish Crossin addresses parliament => More
Nov 08 - First shipment of equipment delivered to Groote Eylandt and Bickerton Island => More
Nov 08 - Boys Adventure from Darwin to Brisbane - follow their progress => More
Oct 08 - $2.7 million in grants awarded for MJD sufferers => More
Aug 08 - MJD Foundation launch - Groote Eylandt => More
More News
Coming Events
Aug 09 - become a regular monthly donor to go in the draw for a beautiful traditional necklace from Groote Eylandt =>More
Jul 09 - MJD Foundation will be at the Naidoc on the Peninsular festival on Sat 11th July (ACT) =>More
Jul 09 - DVD drive - donate your unwanted movies to the MJD Foundation =>More
Jul 09 - MJD Foundation postcards coming =>More
Oct 09 - Volunteer Training
More Events