Newsletters
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Edition 1 - Summer 2008/2009
Edition 2 - Autumn 2009
Edition 3 - Winter 2010
Edition 4 - Autumn 2011
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Annual Reports
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2010/2011 - Annual Report
2009/2010 - Annual Report
2008/2009 - Annual Report |
MJDF Media
 | 22 Apr 09 - ABC Radio Interview with Libby Morgan => Podcast
28 Jul 09 - National TV Campaign launched =>More
15 Aug 09 - The Weekend Australian =>More
22 Oct 09 - ABC Radio Interview with Nadia Lindop =>Podcast
23 Nov 09 - SBS Living Black features Machado Joseph Disease =>More
08 Jun 10 - ABC Radio Interview with Nadia Lindop (Aircraft WCh Lifts) =>Podcast
16 Jun 10 - Koori Mail article on Aircraft Wheelchair Lifts =>Article
03 Dec 10 - Healthy Stories Interview - Simone McGrath =>More
03 Dec 10 - Healthy Stories Interview - Gloria O'Hare =>More
10 Dec 10 - Paul Newman grant in Koori Mail =>More |
MJD Resources | MJD and MJD Foundation Overview - download an overview of Machado Joseph Disease and the MJD Foundation =>Download
Frequently Asked Questions - Have your FAQs answered about Machado Joseph Disease and the MJD Foundation =>Download What is MJD? - Genetics in General Practice presentation =>View here |
MJD and Genetics
 | Genetics 101 - Genetics in General Practice presentation (Part 1)
What is MJD? - Genetics in General Practice presentation (Part 2)
Genetic Counselling checklist - for Doctors/Nurses =>Download MJD Genetic Booklet - English
MJD Genetic Booklet - Anindilyakwa |
MJD Medical Protocols
| Below is a list of Medical Protocols and associated resources for management and treatment of symptoms of Machado Joseph Disease.
Those protocols in DRAFT form, have had limited peer review and should not be used for guidance on treatments - they are published here for the purpose of peer review by individuals in the medical industry. See our full Disclaimer for Draft Protocols here.
DRAFT
1. Sleep Disturbance
2. Vision Disturbance
3. Mobility and Balance Deterioration
4. Fatigue and Lethargy
5. Muscle Cramping/Pain
6. Muscle Weakness
7. Spasticity
8. Swallowing Difficulty
=>Safe Feeding Strategies
=>Feeding Posters
=>Utensils
9. Bowel Incontinence and Obstruction
10. Urinary Incontinence
11. Breathing Difficulty
12. Communication Difficulty
=>Communication Tips when Communicating with someone with MJD
13. Itchy Skin
14. Social and Emotional Wellbeing
15. Oral Health
16. Nutritional Recommendations per Stage of Disease
17. Neurological Assessment per Stage of Disease
18. Equipment per Stage of Disease
19. Therapy per Stage of Disease Those in RELEASED form have been peer reviewed. See our full Disclaimer for Released Protocols here.
RELEASED
None available yet |
Photo Gallery
 | Visit our MJD Foundation photo gallery Aug 2008 - MJD Foundation Launch - Groote Eylandt
Dec 2009 - Young Men's Camp
Dec 2009 - Natalya's Ramp
Apr 2010 - Gwenda's Respite trip to QLD
Jun 2010 - Aircraft Wheelchair Lift launch |
| Other Foundations Spinocerebella Ataxia Australia
Australian Huntington Disease Association
Muscular Distrophy Australia
National Ataxia Foundation - USA
Genetic Alliance - USA
Ataxia UK |
| Groote Eylandt Anindilyakwa Land Council
Dugong Beach Resort
Anindilyakwa Arts and Cultural Centre
GEBIE
GEMCO |