MJD Foundation

News & Events

News

Annual Report 2010-201126 Jan 12 - 2010-2011 Annual Report is now available
=> Download
Making a Spear1 Nov 11 - "Our Story" the young men of Groote Eylandt film their stories => More

Genetics in General Practice30 Oct 11 - MJDF conducts Genetics in General Practice workshops across 5 location in the Top End


What is MJD=> Workshop Flyer
=> Genetics Presentation (Part 1)
=> MJD Presentation (Part 2)
=> Genetic Counselling checklist

My Story08 Sep 11 - Gabriella presents "My Story" using her iPad at the Chronic Disease Network conference in Darwin =>View
Rose at Australia Zoo17 Aug 11 - Holiday of a lifetime for Rose =>More
Medical Protocols01 Aug 11 - MJD Medical Protocol drafts available for peer review =>More
Carer Education Program20 Jul 11 - Carer Education Program is launched =>More
Lab Tour27 Jun 11 - Zebrafish research laboratory tour for MJDF =>More
Newsletter31 May 11 - Download the latest Autumn 2011 edition of our newsletter here =>Download
Gabriella Opera House23 Apr 11 - Gabriella goes on a trip of a lifetime to Sydney for Easter =>More
Neuro Assessment15 Apr 11 - MJDF commences Neurological Assessment services in remote NT communities =>More
Assoc Prof John MacMillan14 Apr 11 - MJD Genetic Education continues =>More
David Daniels13 Apr 11 - MJDF visits Ngukurr =>More
Indigenous Health Awards29 Mar 11 - MJDF finalist in national Excellence in Indigenous Health Awards =>More
Staff14 Mar 11 - the MJD Foundation holds our first Staff Workshop on Groote Eylandt =>More
Kin Connection trip02 Mar 11 - Kin Connection program continues with a trip for Gabriella home to Nhulunbuy / Yirrkala =>More
iPad15 Feb 11 - Follow the progress of our Apple iPad rollout to improve communication =>More
Board12 Feb 11 - Board Governance Workshop =>More
Simone and Joyce12 Feb 11 - MJDF welcomes new Community Worker, Joyce Lalara =>More
Holiday Jamie and Lisa10 Jan 11 - Jamie and Lisa go on a holiday of a lifetime to Cairns, QLD.
=> More
Social and Emotional Wellbeing12 Dec 10 - Social and Emotional Wellbeing project for Groote Eylandt young men =>More
Healthy Stories07 Dec 10 - MJDF proud to support Healthy Stories =>More
Annual Report 2009-201006 Dec 10 - 2009/2010 Annual Report available =>More

Newmans Own Foundation29 Nov 10 - MJDF awarded $40,000 by Paul Newman's Own
                              Foundation =>More

Steve03 Oct 10 - MJDF team in the Umbakumba to Naked Pools 45km bike race =>More
Marko10 Sep 10 - Hydrotherapy kicks off on Groote Eylandt as part of our MJD Therapy Program =>More
ALPA01 Sep 10 - ALPA become sponsors of the MJDF by funding equipment for Elcho Island. =>More
Wheelchair Scales04 Aug 10 - Wheelchair scales purchased for Angurugu Health Clinic =>More
Natalyas Bedroom Blitz03 Aug 10 - Natalya's Bedroom Blitz => More
Aircraft Wheelchair Lift Launch08 Jun 10 - MJDF Launch new Aircraft Wheelchair Lifts =>More
Simone McGrath06 Jun 10 - MJDF Welcomes Simone McGrath to our team =>More
Angurugu Womens Centre Ramp02 Jun 10 - Our third community ramp is completed at the Angurugu Women's Centre =>More
Vehicle21 May 10 - MJD Foundation receive gifted vehicle from the NT Community Benefit Fund =>More
Great Wall16 May 10 - Matt Ashcroft runs the Great Wall of China Marathon and raises over $4,000 for the MJDF =>More
Baniyala Rails10 May 10 - Rotary Club of Sydney Cove build urgent rails in Baniyala =>More 
Gwenda's Respite Trip29 Apr 10 - Gwenda goes on her trip to QLD =>More
Royal Rehab15 Apr 10 - Urinary Incontinence research grant awarded =>More
MJD Genetic Book - Anindilyakwa21 Mar 10 - MJD Genetic Booklet in Anindilyakwa is launched =>More
QLD-map21 Mar 10 - MJD Foundation visit MJD clients in Kuranda, QLD =>More
Centrecorp10 Mar 10 - Centrecorp support the needs of Central Australians living with MJD =>More
Indigenous Community Volunteers03 Feb 10 - First  MJD Foundation volunteer trained by ICV =>More
Photo Gallery      31 Jan 10 - Photo Gallery launched.
Bryan and Kathy Massey26 Jan 10 - Bryan and Kathy Massey are awarded OAMs for their service to the community of Groote Eylandt. =>More
Annual Reports25 Jan 10 - The inaugral Annual Report of the MJD Foundation (2008-2009) is published
=> Download
Gabby's Birthday18 Jan 10 - Gabby's Birthday Party =>More
Natalyas Ramp19 Dec 09 - Ramp for a young MJD client on Groote Eylandt
=>More
Young Mens Camp02 Dec 09 - Young Men's Camp for those with early symptoms of MJD and those at risk.  Sponsored by the Coca Cola Foundation, Vincent Aviation, Carers NT and Neil Westbury =>More
SBS Living Black23 Nov 09 - SBS Living Black features Machado Joseph Disease => More
Joyce and Melinda11 Nov 09 - Joyce and Melinda Lalara go to the Gold Coast with their families => More
St George Foundation10 Nov 09 - St George Foundation provides equipment grant to young people living with MJD =>More
Grant Information Guide03 Nov 09 - Our Research Grant Information Guide provides all information you need to apply for a research grant with the MJDF =>More
Facebook24 Oct 09 - You can now become a fan of the MJD Foundation on Facebook =>More
Twitter24 Oct 09 - You can now follow out Tweets on Twitter =>More
ABC Radio22 Oct 09 - ABC Radio Interview with Nadia Lindop  =>Podcast
Jocks Holiday19th Oct 09 - Jock's holiday to QLD => More
Road to Papunya8th Oct 09 - MJD Foundation make first visit to Papunya (Central Australia) =>More
Gwenda25th Sep 09 - University of Queensland Professors tackle MJD Speech and Swallowing issues => More
Research Advisory Committee19th Aug 09 - Research Advisory Committee established to bring international expertise => More
Doug Talbert16th Aug 09 - Welcome to our new Executive Board member, Doug Talbert => More
Necklace

31st Aug 09 - congratulations to Neridine Bilney for winning our August draw and becoming a regular monthly donor =>More

MOU Signing23rd Aug 09 - Memorandum of Understanding signed =>More
Pool Hoist Launch17th Aug 09 - Groote Eylandt Pool Hoist launch =>More
The Australian15th Aug 09 - The Weekend Australian highlights Machado Joseph Disease on the front page =>More
Tv Ad28th Jul 09 - National TV Campaign launched =>More
Coca Cola Australia Foundation20th Jul 09 - Coca Cola Foundation grant received =>More

Postcard211th Jul 09 - Postcards have arrived - MJD Foundation (and Groote Eylandt) postcards =>More

Independent Living MagazineJune 09 - Independent Living article published =>More
Lioness Club28th Jun 09 - MJD Foundation awarded Lions "James D Richardson Honour Award" =>More
Gayangwa Lalara10th Jun 09 - You can now see our short documentary "No Shame, No Blame... Just Hope" here online =>More
Jun 09 - Some sad news about a beautiful man
=> More
Donate Now30th Apr 09 - MJD Foundation announces online donation facility => More
Joanna Wurramara

30th May 09 - Online Art Auction winner => More

ABC Radio22nd April 09 - ABC Radio Interview with Libby Morgan => Podcast
SBS

24th Mar 09 - SBS Foundation charities for 2009 announced -
MJD Foundation is successful in the state category => More

East Arnhem Shire11th Mar 09 - East Arnhem Shire Council become sponsors of the MJD Foundation => More
Train Trip15th Feb 09 - Roseanna's trip to Seaworld, Movieworld and LOTS of shopping => More

Senate

11th Feb 09 - Senator Trish Crossin addresses parliament => More

Jane's new bed24th Nov 09 - Our first shipment of equipment arrives on Groote Eylandt and Bickerton Island
=> More

Kathy and Bryan Massey awarded NT senior Australians of the year24th Nov 08 
MJD Foundation Board Member Kathy Massey and her husband (and MJD Foundation volunteer carer) Bryan Massey were today awarded Northern Territorian Senior Australians of the year => More

Disability Access Award21st Nov 08 - The MJD Foundation "Disability Access Accommodation Award" for the 2008 best accommodation between Darwin and Brisbane has been awarded to Elderado Motor Inn and Silo Motor Inn , Congratulatons to both. => More

Fredericks Trip

7th Nov 08 - Boys Road Adventure
Read about the adventure day by day, and see what the boys did.             
=> Find out more

Minister Jenny Macklin, Tony Wurramarrba, Gayangwa Lalara30th Oct 08 - $2.7 million in grants awarded for MJD sufferers. => More

MJD Foundation Launch 30th Aug 08 - MJD Foundation launch
The MJD Foundation formally launched on Saturday 30th August at Angurugu, Groote Eylandt. => More

GEMCO28th Aug 08 - GEMCO complete wheelchair ramp
GEMCO completed their first wheelchair ramp at Angurugu, Groote Eylandt.
=> More
Sleep Studies25th Aug 08 - Sleep Studies research
The MJD Foundation engaged the Adelaide Institute of Sleep Health to conduct sleep studies on MJD clients to gain understanding into sleep issues
=> More
Haplotyping28th Aug 08 - DNA Haplotyping Research Project
The MJD Foundation helped to facilitate a DNA Haplotyping research project which will help to understand the disease internationally.
=> More

Genetic Counselling28th Aug 08 - Genetic Counselling service
The MJD Foundation assisted in the facilitation of referrals and translation for Genetic Counselling, conducted for the NT Department of Health and Families by Genetic Health Queensland.
=> More

Board10th Jun 08 - MJD Foundation formally appoints Board
The first formal Board meeting was conducted on June 10th with all Board members formally appointed
=> More
20th May 08 - MJD Foundation is incorporated
On 20th May 2008, the MJD Foundation became incorporated as a charity under the NT Associations act, and has Deductible Gift Recipient status with the ATO.
Mar 08 - Minister Jenny Macklin announces $100,000 grant to MJD Foundation as part of the RPA.
=> More

Coming Events

Hip HopJan 12 - Hip Hop workshops for kids on Groote Eylandt => More
=> Download flyer here
Groote Aircraft LiftFeb 12 - Elcho Island Aircraft Wheelchair Lift launch on 15th Feb =>More 
Backyard BlitzFeb 12 - Backyard Blitz on Groote Eylandt =>More

iTunesOngoing - if you wish to give a small gift to one of our clients, you can donate an iTunes gift card as part of our social and emotional wellbeing project.

 Donate Now